Tag: safety

Living with Agoraphobia

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I thought I would post in honour of world mental health day.

I spoke before about what Agoraphobia is in this post, but today, I’m not talking about definitions and symptoms. I am talking about the daily lives of people living with this disorder and the realities of being Agoraphobic.

Everyone’s experience is going to be different. We all have different things that make us uncomfortable and we are all at different stages of recovery.

I think the best way to talk about this is using my own experience, rather than trying to generalise…so here it goes.

When I was first diagnosed, I had a lot of issues about a lot of things. Leaving my town or going on public transport was a big nope. In my mind I was thinking that if I got on a bus and started to panic, then I had two options. I could stay on the bus and have a panic attack, or I could get off the bus and wait half an hour to get on another bus home, alone and freaking out.

What is the best way to tackle this? Just don’t bother trying. Avoid it. At least that’s what you tell yourself, in reality, you are just making it worse.

I remember one time when I was a little better, I went to Nottingham for the day. We’d just had food and I was walking across the square. I just happened to look around me and noticed how many people there were. I instantly went dizzy and hot. I told my partner that I needed to leave. We started walking back to the car and and then it, one of my worse nightmares. I was sick. Right there in broad daylight in front of a crowd of people.

I had to sit down in a side street and pull myself together. I felt if I moved, I would be sick again. I was dizzy, nauseous, panicking and my head was fuzzy. I wanted to get back to the car, but I didn’t think I could make it safely back without being sick, falling over or dying. I was trapped.

It took about 20 minutes, but I finally managed to get up and drag myself back to the car. As soon as I closed the door, the feelings started to instantly subside. 30 seconds ago, my chest felt tight like I was having a heart attack and couldn’t breathe and had all the symptoms of the flu. Then once I was somewhere I felt safe, I felt better.

Even if I stuck with it and stayed, I would feel sick, extremely tired with a headache and walking round like I was in a dream for the rest of the day. It’s not pleasant.

It all might sound like an exaggeration, but I assure you it’s not. These physical symptoms are often the reason people with anxiety or panic disorders do what they can to avoid situations that make them feel uncomfortable.

The symptoms do feel like a heart attack crossed with a fever. Your chest is tight, you are hyperventilating, you are too hot and shaky, you feel sick and faint. Your fingers and toes go numb. Everything is louder and brighter, you can’t focus, you get confused and the only thing clear in your head is that you need to go home.

Even when you are not having a panic attack and you are just anxious, you can feel sick, your mind is fixated on how uncomfortable you feel, your heart is racing. It feels like you are waiting in the wings about to go on stage in front of hundreds of people, only to realise you don’t know your lines. It really doesn’t make for a nice day.

Agoraphobia can make you feel panicked in a room full of your immediate family and closest friends. It can make holidays and social events feel like a nightmare rather than a fun time. When I book in to have my hair done, there is a 50/50 chance I will make it. Other times I’ll be sat in McDonalds bathroom unable to come out.

I’m not looking for sympathy, I am trying to put it in a way that someone who has never experienced it can understand.

I have managed to make my way through most of this with a lot of hard work and therapy. I am stronger and I know myself better now I have fought this.

It’s not just feeling nervous or as easy as just stepping out of the house. It’s something you have to tackle consistently or you slide back down that slippery slope to being housebound again.

In other words, it’s pretty sh*t.

It’s not always like this though. I find comfort in going out and walking in nature. Some of my favourite places are the busiest (London, Brighton and Tokyo). When you achieve something, it honestly feels like you are invincible. It is such an amazing feeling.

I want to raise more awareness about this disorder because it is a lot more complex than people think.

I Stopped Wearing Jeans To Cope With Anxiety

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It sounds ridiculous, but it’s true.

A few weeks ago, I was writing a post about how to cope with important plans at short notice and as I was doing a bit of research I found this (see link).

For those who haven’t had time to read the journal, basically people with anxiety and agoraphobia tend to exhibit “safety behaviours.” These are things we do to feel safer, but in the grand scheme of things they are a major cause of persisting anxiety.

When I did some more research, I found a lot of the things I did and still do are considered to be in this category. For a while I felt a bit like I had failed and not really made any progress. I felt like I had come so far, only to find that I was superficially coping.

So I had a strop and deleted my post.

After my strop I took a step back and gave it some thought. It’s not the end of the world. I managed to travel across the world, get on public transport, go out for meals with small groups of people and spend a day away from home without being sick. So they’re useful…right?

Below is a list of my safety behaviours and the thought process behind each one. I will order them from most used to least used.

(If you are a mobile user, I suggest using landscape view)

It can be easy for an outsider to look at these and see how irrational they are and for the most part I can see it too. Although during editing, I was reading through and still rationalising them to myself. It is how I have lived my life for the past few years, it’s a difficult thought process to break.

Misattribution Theory suggests that by carrying out these behaviours, we are reinforcing the idea that there is a threat and our actions or thoughts are what keeps us safe, when in reality we are safe and what we do to try and protect ourselves change nothing.

We are meant to be trying to control our anxiety, not limiting our exposure to it.

So to answer my earlier question, no. They are not useful.

Start by tackling smaller or lesser used behaviours, ticking them off your list one at a time. Then work your way up to your most used behaviours. While it may seem challenging at first, stick with it. You’ll soon realise that your bottle of water and your clothing don’t really protect you from anything .
Just take it one step at a time, keep a diary of your successes and work hard. You’ll get there.

I have some more tips for tackling uncertainty and “what ifs” in an older post.

I’m trying my best to change my behaviours, some I’m actively working on and others…well I’m not quite ready to say goodbye yet.

But hey, one day at a time.