Tag: advocacy

Recovery is not linear

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So this week is Mental Health Awareness week. Last year I opened up about my OCD tendencies in this post, but this year I thought I would talk about something that I think will resonate with a lot of you.

Possibly one of the most important things to know if you are coping with a mental illness is that, as the title suggests, that recovery is not linear.

So to use myself as an example:

As many of you know, I am Agoraphobic which means that I struggle in places where I feel trapped. This time around 7 years ago I was housebound after I finished university and with some amazing therapy was able to get myself back out there. Then about 4 years later I struggled, had a bit of a breakdown and ended up quitting my jobs and living off of my savings for a year.

Just before lockdown I was doing really well, I was going and sitting in restaurants with my other half and not having a panic attack and I actually went to a food festival, I was comfortable in a new job. Through lockdown I took on some voluntary work to get me out of the house, but only within my own town really. Now as lockdown is easing, I am struggling a little.

I told myself that I was going to go into the next town over about 10 minutes away on public transport and that went really really well, so last week my next challenge was Nottingham, my closest city. The day I was meant to go I woke up and I felt so sick at the thought of even leaving the house and I didn’t end up going. We are trying again next week though, so hopefully things will go better.

As you can see, I have come a long way from being housebound all those years ago, but it hasn’t by any means been a straight line through to the point I was at before lockdown and honestly I feel like I have taken a step back in recovery.

You know what though, that’s okay.

No one could have predicted that a pandemic or lockdown was on the horizon. My routine has drastically changed, I’ve not been getting out of my comfort zone regularly and I’ve spent most of it not feeling any kind of anxiety at all, just in my little bubble. Now restrictions are easing, it is yet another drastic change being thrust back into society with the pressures of a job and social expectations/events is obviously going to be a bit of a shock.

It’s important to recognise that recovery is not going to happen overnight, it can be frustrating and there are times when it will feel really hard. A big life event might put the brakes on recovery, a little life event might put the brakes on recovery, sometimes you’ll have a good day and a couple of bad days.

There are also a couple of things I would suggest to help you through recovery (again I am not a professional, these are points I have come to realise for myself and I will link some articles at the end for you to do some further research).

  • Make self-care a priority. Self-care isn’t just facemasks and bubble baths. It is about ensuring you are keeping your mental and physical health in check. Reflect on how you are feeling, set boundaries so you don’t take on too much work or enter situations you are not comfortable with, it’s about learning your triggers and how to deal with stressful situations. I will be writing a post about this next week so hopefully that will be of some use to you.
  • Understand that mental health is fluid. No one is doing great all the time, no one is doing terrible all the time. Having days or even long periods where you feel you aren’t at your “peak” is natural. Identifying triggers or stressors can help deal with these situations.
  • You aren’t failing. I felt like this when I didn’t make it to Nottingham, but in reality I’m not failing. I have made massive progress and a little dip isn’t going to change that. I know that it might be a bit of hard work to get to where I’d like to be and I will keep trying until I get there. The fact that I can’t do it right now, means exactly that. I can’t do it RIGHT NOW.
  • Recovery isn’t an end goal. Jade, the Author of the article “Recovery Isn’t Linear: The Importance of Realistic Recovery” put it quite nicely. She said: “Recovery isn’t some big, shiny end goal: it is a journey of constant improvement, growth, and, sometimes, mistakes.”

Remember, we are all dealing with a lot right now. Look after yourself and you’ll get there.

I have linked a few articles and posts from other people on the same topic as well as some relapse prevention resources below:

A year in review

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Today I should be coming home from Japan, but as you may have guessed I didn’t get to go. It made me think of how different things are in comparison to last year. This time in 2019 I was taking a year off from work, living off my savings and even though I felt like I had made some progress, I was still over-planning, I was still unable to get to Birmingham and was a 50/50 chance I would get on the plane for my first holiday abroad.

This year I am working, going out for meals, coming off of medication and before COVID hit, I was actually 100% excited to go back to Tokyo. The change in myself is huge. Before lockdown, I was sitting in Yo! Sushi with my partner eating spicy food after a brief meet up with friends. That is something I could have only dreamed of even four months before.

I have a job which I enjoy and look forward to, it’s only part-time but after two six-day weeks with dining out, babysitting and the gym sprinkled in, I have proven to myself that I am able to take on more. I have attended food festivals, dined out and spent more time in Birmingham. I honestly owe a lot to my holiday last year.

No, I’m not cured. These things do not come easy and some days I still need to mentally prepare myself to walk out the door. I am, however, a lot more confident, a lot happier and I just know I can do whatever I put my mind to. I would say to anyone who is afraid to take the next step, not just in Agoraphobia recovery but in anything. Do it carefully, do it sensibly and you will not regret the decision to just do it. It could change your life.

So what’s next for me?

Well, I am planning more time away and even a solo holiday, but that may be a little further in the future. I’m getting out more, I’m hoping to be more confident around food and I MIGHT even socialise but let’s not get hasty.

Living with Agoraphobia

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I thought I would post in honour of world mental health day.

I spoke before about what Agoraphobia is in this post, but today, I’m not talking about definitions and symptoms. I am talking about the daily lives of people living with this disorder and the realities of being Agoraphobic.

Everyone’s experience is going to be different. We all have different things that make us uncomfortable and we are all at different stages of recovery.

I think the best way to talk about this is using my own experience, rather than trying to generalise…so here it goes.

When I was first diagnosed, I had a lot of issues about a lot of things. Leaving my town or going on public transport was a big nope. In my mind I was thinking that if I got on a bus and started to panic, then I had two options. I could stay on the bus and have a panic attack, or I could get off the bus and wait half an hour to get on another bus home, alone and freaking out.

What is the best way to tackle this? Just don’t bother trying. Avoid it. At least that’s what you tell yourself, in reality, you are just making it worse.

I remember one time when I was a little better, I went to Nottingham for the day. We’d just had food and I was walking across the square. I just happened to look around me and noticed how many people there were. I instantly went dizzy and hot. I told my partner that I needed to leave. We started walking back to the car and and then it, one of my worse nightmares. I was sick. Right there in broad daylight in front of a crowd of people.

I had to sit down in a side street and pull myself together. I felt if I moved, I would be sick again. I was dizzy, nauseous, panicking and my head was fuzzy. I wanted to get back to the car, but I didn’t think I could make it safely back without being sick, falling over or dying. I was trapped.

It took about 20 minutes, but I finally managed to get up and drag myself back to the car. As soon as I closed the door, the feelings started to instantly subside. 30 seconds ago, my chest felt tight like I was having a heart attack and couldn’t breathe and had all the symptoms of the flu. Then once I was somewhere I felt safe, I felt better.

Even if I stuck with it and stayed, I would feel sick, extremely tired with a headache and walking round like I was in a dream for the rest of the day. It’s not pleasant.

It all might sound like an exaggeration, but I assure you it’s not. These physical symptoms are often the reason people with anxiety or panic disorders do what they can to avoid situations that make them feel uncomfortable.

The symptoms do feel like a heart attack crossed with a fever. Your chest is tight, you are hyperventilating, you are too hot and shaky, you feel sick and faint. Your fingers and toes go numb. Everything is louder and brighter, you can’t focus, you get confused and the only thing clear in your head is that you need to go home.

Even when you are not having a panic attack and you are just anxious, you can feel sick, your mind is fixated on how uncomfortable you feel, your heart is racing. It feels like you are waiting in the wings about to go on stage in front of hundreds of people, only to realise you don’t know your lines. It really doesn’t make for a nice day.

Agoraphobia can make you feel panicked in a room full of your immediate family and closest friends. It can make holidays and social events feel like a nightmare rather than a fun time. When I book in to have my hair done, there is a 50/50 chance I will make it. Other times I’ll be sat in McDonalds bathroom unable to come out.

I’m not looking for sympathy, I am trying to put it in a way that someone who has never experienced it can understand.

I have managed to make my way through most of this with a lot of hard work and therapy. I am stronger and I know myself better now I have fought this.

It’s not just feeling nervous or as easy as just stepping out of the house. It’s something you have to tackle consistently or you slide back down that slippery slope to being housebound again.

In other words, it’s pretty sh*t.

It’s not always like this though. I find comfort in going out and walking in nature. Some of my favourite places are the busiest (London, Brighton and Tokyo). When you achieve something, it honestly feels like you are invincible. It is such an amazing feeling.

I want to raise more awareness about this disorder because it is a lot more complex than people think.

5 Easy Ways To Help Someone With A Mental Illness

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I’m sure a lot of people reading this blog have at some point in their life been affected by mental illness. Whether that be yourself or someone you know.

Sometimes it can feel like you don’t know what to say, how to help or what to do. I know that even when I approach someone else going through the same thing, I can find it difficult to know what to say.

That said, you don’t have to be a therapist or a master of advice to help.

I have compiled a list of 5 things I think could help anyone supporting someone having a rough time or opening up to you about their mental illness.

Obviously this is not an exhaustive list and if people are interested I may look at making a guide for email subscribers, let me know!

1. Hold them accountable for their behaviour

Now I’m not saying call them out when they are trying to cope with their situation in a positive way. Not at all.
But…
If you are helping someone it is important to set boundaries and let them know what behaviours are unacceptable or dangerous.
For example, abuse behaviour or language targeted at you should not be tolerated. Having a mental illness does not give you a free pass to treat people poorly. Ensuring that they are accountable for their behaviour protects the well being of both of you.

2. Don’t judge

Now this may sound contradictory to what I have just said. However, there is a big difference between judging someone and holding them accountable for their actions/words.
If your friend, family member, colleague approached you and confides in you about an issue you they having, the last thing they need is “don’t be silly” or “it’s just a crowd of people.” Understand what they are saying and keep an open-mind.

3. Research

There’s never any harm in doing a bit of research.
Mental health issues are often more complex than what the media shows e.g. depression is not sadness and Agoraphobia is not being scared of open spaces.
A bit of research can help both of you create a more supportive and trusting relationship.
A little understanding goes a long way.

4. Listen

This ties in with what I have said before. If someone opens up to you, it doesn’t matter if you have experienced something similar, have a degree in psychology or have your own thoughts about the topic.
Stop.
There’s nothing worse than trying to explain what you are going through to have someone else interject with “faux professional advice” or brushing off what you are saying.
Just listen.
Hear what they have to say, ask any questions you have, just give them space to talk. Everyone’s experience is different and while advice is fine, wait for them to ask.

5. Take care of yourself

This to me is the most important thing.
Helping someone is not easy, it can be difficult and stressful. Make sure you look after yourself mentally and physically and give yourself space if you need to.
Remember, you can’t help someone if you aren’t looking after yourself.