Finally opening up for Mental Health Awareness Week

This is something I have found particularly difficult to talk about, but I threw a strop yesterday, so here we are.

Today I will be talking about my obsessive and intrusive thoughts surrounding contamination, mainly around mould, insects and dirt. Despite dealing with this for over 20 years, I still find it difficult to describe it in an all-encompassing way.

Chances are, unless you are immediate family, you would never have known or noticed anything strange about my behaviour (other than general awkwardness). With it being part of daily life, I have picked up some little tricks to appear “normal”.

I remember as far back as primary school not wanting to share my crisps on the playground or not wanting anyone to touch my food. I wouldn’t share with members of my family and if they even grazed it, it was theirs. Since then it has kind of evolved.

There were times at uni when I wouldn’t eat or even go into the kitchen because we had an infestation of silverfish. Takeaway was my best friend and I had an abundance of disposable cutlery. Luckily that was only a year. For the other two years I kept my cutlery and dishes in my room, because as lovely and clean as my housemates were, I couldn’t stand the thought of anyone else using my stuff.

I can’t eat outside in spring/summer because there are so many flies around. There has been many a BBQ where I wave at people through the window as I eat my burger inside. I am forever mystified at people who have dinner outside and peaceful picnics are fictional as far as I’m concerned.

Cleaning without thick gloves is a definite no, otherwise my hands feel dirty for days, with no amount of scrubbing and washing will take the feeling away (also rubber gloves on fabric surfaces removes pet hair so easily…you’re welcome). I can’t prepare or eat food with my hands during this time, but hey, eating a scone with a knife and fork isn’t all that bad. As long as it is my own personal knife and fork of course.

There are a lot of nuances that quite honestly I don’t understand. I know it’s not rational, I don’t try to rationalise it. I just get on with it.

My family are used to my quirks. I can’t say they understand and I don’t expect them to, but they just let me get on with it.

It’s not a case of just getting over it, all the years of negative thinking and reinforcement has made it difficult to improve. Imagine trying to eat a live spider, how your body would react. That’s what I feel like trying to eat 2 day old bread. It just rejects it. Living with other people ensures that food does not go to waste and I am very aware that this sounds like an overdramatic first-world problem, I would like to point out that I am grateful for being able to afford the food that I want.

I do however hope that there is someone out there that understands, because it is quite a lonely feeling. No Google results come up with anything like this apart from maybe contamination OCD, but even then I don’t feel scared of getting sick…I don’t think. I am not diagnosed and don’t think I would be able to face going through any sort of therapy. The Agoraphobia recovery is enough (and it is going amazingly well, but more on that at a later date.) I guess in a way it is about control. When things get stressful, I find myself having a more difficult time. I don’t know. I will stop oversharing at some point.

I was in two minds whether to post this, but I had a strop yesterday when my pizza turned up with a dead fly on it. Wouldn’t have been a massive deal, but I was two mouthfuls in. I was sick and didn’t eat for the rest of the day. Today I am struggling, but I am cracking on the best I can. I just don’t want to go back to having to check through my entire meal for insects before I can eat. That’s not a fun time.

I will stop complaining about my life now, but I hope at least a couple of people out there don’t think I’m a massive weirdo and anyone that can relate, please reach out.

Happy #MentalHealthAwarenessWeek everyone!

“What if?” & Why It’s Holding You Back

“What ifs” are not in themselves an issue, e.g. “what if the traffic is bad?” As a rationale to leave earlier, ensuring that you arrive on time. The problem comes when the statement starts negatively impacting your daily functioning. E.g. “what if the traffic is bad?” As an excuse to stay at home in case you have a panic attack and can’t easily get to a ‘safe place.’

This one little phrase and how you approach it can be make or break.

Before I went to therapy, I hadn’t really given much attention to my specific thoughts, only “oh my god I need to leave now!” However after sitting down with my therapist, she made me realise that the anticipation of leaving the house culminated in a lot of “what if?”

Here are some I still battle with:

  • “What if I get to the restaurant and it’s busy and I need to leave? What will people think?”
  • “What if I’m with people that don’t understand and I start panicking?”
  • “What if I can’t go back to work without panicking and end up in the same state as last time?”
  • “What if people just think I’m an inconvenience?”
  • “What if I never amount to anything and have wasted my life?”
  • “What if I eat and bloat and then my clothes get too tight and I feel sick?”
  • “What if I get too far away from my ‘base’ and can’t get back easily?”

I know some of these seem silly to most people, I know it’s silly. But in my mind, there is nothing worse than feeling like I have to be in a certain place where I can’t just leave without a) having to explain myself; b) causing a scene or c) ruining the event.
It rules my life and makes me miss out on social events and great opportunities.


Uncertainty

Uncertainty is a major player when it comes to anxiety, especially Agoraphobia. Using ‘what if’ and worrying can make it feel like you are taking back control, preparing for the unknown, when in reality you are solidifying your negative beliefs, affirming your behaviour and continuing the cycle of anxiety.

It can manifest in over-preparing, trying to find solutions to things that are out of your control and avoidance.

It is important to stop and evaluate. Does worrying make anything more certain? For example, does worrying about an exam help you to pass?

Learning to accept uncertainty is an important step.

Little steps such as looking at solutions to problems who’s outcome you can impact as opposed to problems you cannot change can be a reassurance.

Another way could be to keep a diary of facing uncertainties. In which you note:

Diary SectionExample
The SituationThe Train
Feared OutcomeBusy train and panic attack
Actual OutcomeIt was busy, didn’t have panic attack
How You CopedPracticed breathing, rationalised my thoughts


Over time, you will see that you are able to manage uncertain situations and they are not as terrifying as they first seem.

A little CBT and challenging your beliefs can go a long way.

For me this is an ongoing process and no matter how well I do, my initial reaction to leaving the house and the moment before I step out the door is “arghhhh, what if..?”


I’m sure with time I’ll get there and so will you.